Petri
Level 4 Valued Member
Hello, new to the forum. I will cut to the chase. I'm 36 years old and few months ago I was diagnosed by a sickness called cervical dystonia. It affects the neck and sometimes shoulder muscles and makes the muscles contract without my say so. It makes my head tilt to the left and it makes it really hard to do certain type of stuff, be it even doing the dishes and carrying stuff, or even walking. I have had my first botulin injections week ago and have slight improvement. The injection to the muscles is the main treatment.
Cervical Dystonia - NORD (National Organization for Rare Disorders)
It's a rare condition and there's really a limited amount of information about it. In Finland where I live there are maybe little over thousand people who have it. When it comes to info about training and cervical dystonia, the info is really limited, in both languages. Found only few links and one persons story who has a dystonia in his hands.
I would really like to continue training with kettlebells and just training in general. Was just hoping if there's anyone who has trained someone with the condition or even has it.
I have contacted few different well known professionals physiotherapists who are also seasoned personal trainers in my area but it's a rare diseases so they don't have much experience when it comes combining the condition with training.
It affect each person individually but just looking for some sort of experiences etc.
Thank you
Cervical Dystonia - NORD (National Organization for Rare Disorders)
It's a rare condition and there's really a limited amount of information about it. In Finland where I live there are maybe little over thousand people who have it. When it comes to info about training and cervical dystonia, the info is really limited, in both languages. Found only few links and one persons story who has a dystonia in his hands.
I would really like to continue training with kettlebells and just training in general. Was just hoping if there's anyone who has trained someone with the condition or even has it.
I have contacted few different well known professionals physiotherapists who are also seasoned personal trainers in my area but it's a rare diseases so they don't have much experience when it comes combining the condition with training.
It affect each person individually but just looking for some sort of experiences etc.
Thank you